“Multicenter study of patient-reported gastrointestinal symptoms in people with Cystic Fibrosis (GALAXY)”

The purpose of any research study is to answer questions.  Cystic fibrosis (CF) is a genetic disorder that affects the body’s ability to move salt and fluids in and out of the cells of the lungs, intestines, liver, pancreas, and sweat glands. Digestive symptoms (relating to the stomach and intestines) are very common in people with CF, and may include poor appetite, abdominal pain, constipation and nausea/bloating.  These symptoms can be troublesome and negatively affect quality of life. 
In this study we will:
Assess the feasibility of the electronic PROs conducted outside-the-clinic.
Estimate the prevalence and variability of GI symptoms occurring in pediatric and adult patients with CF.
Describe current management of GI symptoms in patients with CF.
Gather information to guide and inform on the design of future algorithm-based approaches to treating GI symptoms in people with CF.