This study investigates liver diseases by collecting medical information over a period of 10 years. The goal is to understand better the effects, causes, outcomes, and complications of specific liver diseases. Liver diseases can affect the liver's ability to function properly, leading to various health issues.
Participants will undergo various medical assessments to contribute to a comprehensive database. These assessments may include clinical evaluations, blood tests, and other diagnostic procedures to gather detailed health information.
- Who can participate: Children and young adults diagnosed with one of four cholestatic diseases, from birth through age 25, are eligible. Siblings with alpha-1-antitrypsin deficiency or Alagille syndrome without liver disease may also participate. All genders, races, and ethnic groups are welcome.
- Study details: Participants will provide medical information through assessments and tests.
- Study Timelines: The study will last 10 years.
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